We started out 2 parents of children with rare disorders that are due to nonsense mutations. Both our disorders are rare enough, that there isn't any hope for a drug as drug companies would ever pick up such rare disorders. We strongly believe our thread of hope is the fact our kids mutation type is nonsense mutation. From 2 parents, we grew to 4, at this point we move from whatsap into a Facebook group to support the local nonsense community.