Foundation management board

Ran Naot

Foundation co-founder & president. 
A father to child with a nonsense mutations in the CHD2 gene. A software eng. by day and managing the foundation by night. 

"Being part of an ultra rare disorder, nonsense mutation is our thread of hope".

ShiraHess.jpeg

Shira Glantz

Foundation co-founder and management board.

A mother to a child with a nonsense mutation in the SCN1A gene.
A software engineer and sports and music lover.

"The progress in science gives me so much hope and keeps me optimistic and positive"